Breathtaking Fundraising

CategoriesSuccess Stories

Baby Juvan’s story

Baby Juvan was born during July 2023. Shortly after his birth he was diagnosed with Cystic Fibrosis. Due to 5 major surgeries and continued treatment for Cystic Fibrosis, this family has a huge financial burden to cover the medical costs for baby Juvan’s treatment.

CategoriesSuccess Stories

Battle to breathe: The Olivier Siblings

The battle to breathe Joshua (18) and his sister Mia (15) were both born with Cystic Fibrosis.

It’s an “invisible disease”, a chronic life- threatening disorder that damaged the lungs and digestive system. Cystic Fibrosis (CF) causes thick mucus that clog organs: lungs, pancreas and intestines.

It causes malnutrition, poor growth, frequent respiratory infections, breathing problems and chronic lung disease with permanent damage.

This family not only face health challenges, they struggle covering medical expenses too. At times heavy doses of antibiotics are needed, more medication, nebulizer, physiotherapy, tests, x-rays, prodding and poking. It’s been a tough journey for these siblings: they have been so brave facing this big challenge from such a young age.
They need to start using Trixacar as soon as possible. The target just for medical aid is R8700 pm.

CategoriesSuccess Stories

Anika’s Story

Anika is our 15-year-old girl with Cystic Fibrosis (CF).

It is a genetic condition that affects multiple organs in the body, requiring daily treatments and medications, as well as regular hospital stays. She needs to start on a modulator as soon as possible. We need to pay for the medication upfront and then her medical aid will reimburse us partially so that we can use those contributions again for the next batch of medication.

CategoriesSuccess Stories

Ruach: Life-giving breath of God

Anika is our 15-year-old girl with Cystic Fibrosis (CF).

It is a genetic condition that affects multiple organs in the body, requiring daily treatments and medications, as well as regular hospital stays.

Anika fights the effects of Cystic Fibrosis every day. CF is degenerative. The lungs, pancreas, digestive system, and liver become more and more damaged over time. CF is also life-shorting, reducing life.

New modulator drugs like Trikatra/Trixacar, correct the problem of CF at cellular level. These drugs are a game changer.

Many people with CF on modulators are living normal lives.

Unfortunately, this life-saving medication is not registered in South Africa, and is expensive and ongoing. So, we are looking to access Trixacar, a generic which is produced in Argentina. Trixacar is currently around R105 000 per box, not including travel and accommodation costs. We need to raise at least R110 000 to get her started on this medication.

Anika needs to start on a modulator as soon as possible. We need to pay for the medication upfront and then her medical aid will reimburse us partially so that we can use those contributions again for the next batch of medication.