Memory Makers raising funds for Cystic Fibrosis
We make small pieces of mixed media art and sell them as gift tags. The tags are a treasure to have and to give. Megan is the moving force behind the idea. Read more about her here:
We make small pieces of mixed media art and sell them as gift tags. The tags are a treasure to have and to give. Megan is the moving force behind the idea. Read more about her here:
My name is Dharma Bredell I am 23 years old and just before my fifth birthday, I was diagnosed with Cystic Fibrosis. My normal day consists of two nebulisations […]
A group of friends aiming to create awareness of Cystic Fibrosis and raise R100 000 by sharing our daily cold plunges.
Richard Burger was diagnosed with Cystic Fibrosis at the age of 13. He loves cricket and being active outdoors. Read his story to see how you can support him.
Baby Juvan was born during July 2023. Shortly after his birth he was diagnosed with Cystic Fibrosis. Due to 5 major surgeries and continued treatment for Cystic Fibrosis, this family has a huge financial burden to cover the medical costs for baby Juvan’s treatment.
Breathtaking Fundraising, a non-profit that assists individuals with CF in SA to access medication and raise awareness about this debilitating condition, received the donation through a golf day event at Wingate Golf Course in Pretoria by donors TRX Electronics and Pachas Restaurant on 15 March 2024.
The battle to breathe Joshua (18) and his sister Mia (15) were both born with Cystic Fibrosis.
It’s an “invisible disease”, a chronic life- threatening disorder that damaged the lungs and digestive system. Cystic Fibrosis (CF) causes thick mucus that clog organs: lungs, pancreas and intestines.
It causes malnutrition, poor growth, frequent respiratory infections, breathing problems and chronic lung disease with permanent damage.
This family not only face health challenges, they struggle covering medical expenses too. At times heavy doses of antibiotics are needed, more medication, nebulizer, physiotherapy, tests, x-rays, prodding and poking. It’s been a tough journey for these siblings: they have been so brave facing this big challenge from such a young age.
They need to start using Trixacar as soon as possible. The target just for medical aid is R8700 pm.
Anika is our 15-year-old girl with Cystic Fibrosis (CF).
It is a genetic condition that affects multiple organs in the body, requiring daily treatments and medications, as well as regular hospital stays. She needs to start on a modulator as soon as possible. We need to pay for the medication upfront and then her medical aid will reimburse us partially so that we can use those contributions again for the next batch of medication.
Read this amazing account of how Trixacar has changed Myrnalize’s life. We are currently in the process of raising R130 000 for her to be able to continue treatment.
Anika is our 15-year-old girl with Cystic Fibrosis (CF).
It is a genetic condition that affects multiple organs in the body, requiring daily treatments and medications, as well as regular hospital stays.
Anika fights the effects of Cystic Fibrosis every day. CF is degenerative. The lungs, pancreas, digestive system, and liver become more and more damaged over time. CF is also life-shorting, reducing life.
New modulator drugs like Trikatra/Trixacar, correct the problem of CF at cellular level. These drugs are a game changer.
Many people with CF on modulators are living normal lives.
Unfortunately, this life-saving medication is not registered in South Africa, and is expensive and ongoing. So, we are looking to access Trixacar, a generic which is produced in Argentina. Trixacar is currently around R105 000 per box, not including travel and accommodation costs. We need to raise at least R110 000 to get her started on this medication.
Anika needs to start on a modulator as soon as possible. We need to pay for the medication upfront and then her medical aid will reimburse us partially so that we can use those contributions again for the next batch of medication.